What We Need

We are looking for all volunteers - able-bodied people, spoonies, people with a few minutes here and there or people with hours and hours, people with multiple areas of talent and interest or people with 1 skill. We have many opportunities. During the recorded info session, we discussed:

1) Our Operations: An overview of how we collaborate, fund, and execute research as a decentralized network.

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2) Areas of Need: Learn about potential roles, including data analysis, project management, community outreach, and more.

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3) Real Stories: Current volunteers talked about their experiences.

We are a global, remote team, contributing spoons as able. We envision a world where individuals with complex multi-system chronic conditions (CMCC) , like ME/CFS, Long COVID, and associated conditions receive integrated, science-driven, and compassionate care.

Our mission is centered on pioneering accessible patient-led efforts to uncover scientific insights and improve overall quality of life for our global community. We believe that by working together, we can make a positive change in the lives of those affected by chronic illnesses.