Upcoming Events

OMF.ngo & Renegade Research host patients and researchers focused on answering questions about crashes and post-exertional symptom worsening (PEM/PESE/PENE) in ME/CFS. What are they? What are the different experiences of them? What are the different triggers? How do we measure crashes? How do we measure post-exertional symptom worsening?

Amatica Health joins Renegade Research for a roundtable on the biology of Long COVID and ME/CFS, and how large-scale RNA sequencing can advance research into these underserved conditions.

Presenter: Amatica CEO & Co-Founder Nick Boyd-Gibbons, MEng, PhD.

Brayden Yellman, MD​ & ​CMO John Haughton, MD, MS​, lead a follow up discussion with patient reps regarding the July 15 joint panelist event with OMF on crashes and post-exertional symptom worsening. We must figure out what the definitions and ways to measure are for post-exertional malaise (PEM), post-exertional symptom exacerbation (PESE), and post-exertional neuroimmune exhaustion (PENE).

Avram Gold, MD, from Stony Brook Medical will talk about a long covid study on sleep. A. Joseph Borelli, Jr., MD, will share his lived experience of UARS. Patient expert Natalie will also share. Registration link not available yet.

What if researchers could hear directly from the patients they study? 
We are hosting a Research Roundtable to bring together patients with complex, multi-system, chronic conditions with researchers for exactly that. Each speaker will share 5 minutes about their medical journey (e.g. diagnoses, triggers, progression, test results, what has or hasn't helped), followed by researcher Q&A.

Registration Link not yet available. Check back soon.