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Upcoming Events

Friday at 1 pm EDT US

Patients to Researchers Lived Experience Research Roundtable

What if researchers could hear directly from the patients they study? 
We are hosting a Research Roundtable to bring together patients with ME/CFS, Long Covid and other complex, multi-system, chronic conditions with researchers for exactly that purpose. Each speaker will share 5 minutes about their medical journey (e.g. diagnoses, triggers, progression, test results, what has or hasn't helped), followed by a question and answer sessions with researchers.

August 14, 2026

Friday at 1 pm EDT US

Friday at  2 pm EDT US

Vagus Nerve Stimulation Informal Tracking Project for ME/CFS and Long Covid

Renegade Research Founder and CSO Tess Falor and Renegade Research advisor Rivka Soloman will report on an informal, remote, observational project they have been running using cervical vagus nerve stimulation (VNS) for ME/CFS and Long Covid. CMO or electroCore and Chairman of the Vagus Nerve Society Peter Staats, MD, will share the science behind vagus nerve stimulation. Liisa Selin MD, PhD, viral immunologist at SelinLab at University of Massachusetts Chan Medical School, will discuss immune changes in one patient upon using the Truvaga VNS device. Additionally, project participants Malcolm Brooks and Giovanni Clarke, will share experiences with their treatment and project. Solve ME/CFS Initiative VP of Scientific Programs Jessica Maya will also attend.

August 21, 2026

Friday at 2 pm EDT US

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Recordings.avif
Watch recordings of past roundtables
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