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Patients are already discovering clues
that could lead to the
next
breakthrough.

 

We test promising signals and translate what we

learn into better care for people with ME/CFS and Long COVID.

Decentralized research and care built for the patients traditional systems miss.

HOW RENEGADE RESEARCH WORKS

From patient discoveries to better care and scientific evidence.

Patients, caregivers, and clinicians often identify important clues long before they are formally studied.

When we see unexpected improvements, remission events, or promising responses to treatment, we investigate those signals through a structured process designed to determine what deserves further study.

By combining decentralized research with clinical care, we can move promising ideas toward evidence faster.

Lived Experience. Professional Expertise.

Our team combines professional expertise in patient care, research, and operations with firsthand experience navigating complex chronic illness. This unique perspective shapes everything we do, from identifying promising signals to improving care and advancing research.

Engineers • Physicians • Health Coaches • Researchers

Featured in:

Science News
The Guardian
National Geographic

How we accelerate progress

Renegade Research combines patient-led research, clinical care, and knowledge sharing to identify promising signals and

accelerate the path to better treatments.

Featured Initiatives

Telehealth and Medical Coaching

Renegade’s medical coaching, care-navigation and telehealth model helps patients implement a care framework designed to help them optimize function, while simultaneously uncovering their own molecular and/or mechanical dysfunction, which in turn, improves their individual care and informs the greater community.

 

Coaches do not replace clinicians; they make medical care usable for patients who are too sick, cognitively impaired, or systemically fragile for the standard model. Telehealth (available in MD and NY) provides clinical expertise within this comprehensive and integrated care model. This support also strengthens the research ecosystem by improving tracking, clarifying response signals, and helping clinicians make safer decisions. 

Our expert team—John Haughton, MD, MS; Board-Certified Health Coach Isabel Burnett; Science Communicator Kat Boniface; and Public Health PhD Tara Foti, have the expertise, along with the lived experience to offer you a personalized roadmap with attentive support.

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Community Education and Connection

Research and Clinician's Roundtables

We bring together clinicians, researchers, patients, and advocates to translate emerging science into practical understanding and to make sure patient experience stays central to the conversation.

Roundtables have covered orthostatic intolerance, neuroinflammation, mast cell activation, microclots, venous compression, GLP-1 mechanisms, gut-brain axis dysfunction, and more. All sessions are recorded and shared publicly, so patients and clinicians who can't attend live still have access.

In a field where patients are often forced to educate their own doctors, these conversations help close the gap.

Sign Up for Email Updates

Subscribe to get email updates and access to exclusive subscriber content. 

Help our work move faster

Every study we run shortens the time patients spend waiting for answers.

If you would like to donate appreciated stock or crypto, please email development@renegade-research.org.

Recent Posts by Team Members

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